The UF Health Center for Pediatric Neuromuscular and Rare Diseases is founded on the philosophy that integrated, interdisciplinary care is the most effective approach for patients with neuromuscular and orphan diseases.
The center coordinates and provides patient care for these disorders through expert specialists from diverse medical backgrounds in one centralized location. Today, the center consists of a collaborative effort of specialists with backgrounds in cardiology, critical care, endocrinology, gastroenterology, general pediatrics, hematology/oncology, nephrology, neurology, occupational and physical therapy, orthopaedics, pulmonology, rheumatology and surgery.
The UF Health Center for Pediatric Neuromuscular and Rare Diseases provides patient-centric care, allowing patients to interact with all necessary medical providers in one location. This care model is designed to address the many aspects of a patient's medical needs in a single visit. Established in 2010 as a partner with the Muscular Dystrophy Association, the center operates weekly from our UF Health Pediatric Specialties - Medical Plaza location in Gainesville, Florida.
Learn more about our team, our research, and the treatments we offer for the pediatric neuromuscular disorders diagnosed and cared for at our center.
Research
Improving patient care by finding better ways to treat those experiencing pain or discomfort from any neuromuscular disease is one of our major goals, and we do that through research and clinical trials. Learn more by visiting the Powell Center for Rare Disease Research and Therapy.
Resources
Muscular Dystrophy Association (MDA)Friedreich's Ataxia Research AllianceThe Duchenne RegistryJett FoundationLittle Hercules FoundationParent Project Muscular Dystrophy (PPMD)Spinal Muscular Atrophy FoundationTreat-NMD Neuromuscular NetworkUnderstanding DuchenneWalking StrongWorld Duchenne Organization (WDO)

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